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Generally cloudy. Slight chance of a rain shower. High 63F. Winds light and variable..
Partly cloudy skies this evening will become overcast overnight. Low 51F. Winds light and variable.
Adeline R. Ormsby, true to character, strikes a pose. Provided photo
Adeline R. Ormsby gives a happy thumbs up. Provided photo
Adeline during a rainbow photoshoot. Provided photo
Adeline R. Ormsby, far right, smiles alongside her friends at a slumber party-themed party in March. Provided photo
Adeline R. Ormsby, left, and her cousin and best friend Penelope Q. Ray during a rainbow and glitter-themed photoshoot. Provided photo
Adeline R. Ormsby and her mother, Jada R. Ormsby. Provided photo
A younger Adeline R. Ormsby smiles with some plants. Provided photo
Adeline R. Ormsby and her mother, Jada R. Ormsby, when Adeline was younger. Provided photo
A baby Adeline R. Ormsby. Provided photo
Adeline R. Ormsby, true to character, strikes a pose. Provided photo
Adeline R. Ormsby gives a happy thumbs up. Provided photo
Adeline R. Ormsby, far right, smiles alongside her friends at a slumber party-themed party in March. Provided photo
Adeline R. Ormsby and her mother, Jada R. Ormsby. Provided photo
A younger Adeline R. Ormsby smiles with some plants. Provided photo
Adeline R. Ormsby and her mother, Jada R. Ormsby, when Adeline was younger. Provided photo
A baby Adeline R. Ormsby. Provided photo
ELLISBURG — On Sunday, Sept. 11 — a date already marked in history for the loss of loved ones far too soon — Adeline R. Ormsby was taken from her own following a lifelong battle with medical problems many couldn’t imagine.
Two weeks shy of her 9th birthday, Adeline died Sunday morning with her family by her side under the care of Hospice of Jefferson County at the home she shared with her mother, Jada R. Ormsby, and her maternal grandparents in Woodville.
Adeline during a rainbow photoshoot. Provided photo
She was born with congenital heart defects, including tetralogy of fallot, a rare condition caused by a combination of four heart defects that are present at birth, as well as pulmonary atresia, ventricular and atrial septal defects and more; and lung issues like bronchiolitis obliterans and chronic respiratory failure. Adeline dealt with them much in her young life. There was also a chromosomal deletion affecting her. Too ill to be a viable transplant candidate, the name of the game for Adeline was comfort care before she passed.
Amid all the hardships she faced, Adeline was a happy child and for the most part, rarely complained about the hand she had been dealt. She enjoyed Disney movies, makeup, party packs of tacos from Taco Bell, cute animals and so much more. In the summer, Adeline liked to be outside in the hot tub, use her swing set, and loved snuggling with the family’s dogs.
She also loved spending time with her loved ones, especially her best friend and cousin Penelope Q. Ray. Because Adeline had never been to a slumber party, and couldn’t handle an actual one, Jada planned a slumber party-themed party for her in March. The color scheme was pastel rainbow and all the girls had matching pajamas, slippers and little sleep masks. The idea was to try to fit every slumber party she might otherwise have had into one day.
A celebration of life will be held in honor of Adeline on what would have been her 9th birthday, at 3 p.m. Sept. 24 at the Henderson Fish and Game Club, 11837 Game Club Road. Per Adeline’s request, no black clothing is to be worn at the celebration in favor of bright, fun colors she loved. All are welcome, especially kids, to join in on the big birthday party Adeline never got to have, her mom said.
Adeline R. Ormsby, left, and her cousin and best friend Penelope Q. Ray during a rainbow and glitter-themed photoshoot. Provided photo
For anyone who would like to contribute, monetary donations will be collected as the family would like to start an annual scholarship this year in Adeline’s name for a South Jefferson Central School District senior who has plans of going into the medical field.
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